Our Library
All resources collated in this library are Mad positive and affirming or support the Mad movement and align with our values.
TACFLE Publications
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Peer support mental health services: Promoting person-centred and rights-based approaches
by World Health Organisation, Community Guidance on Human Rights and Recovery, Guidance and Technical Packages on Community Mental Health Services,
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Early Warning Signs of a Mental Health Tsunami: A Coordinated Response to Gather Initial Data Insights From Multiple Digital Services Providers
by Frontiers in Digital Mental Health, Feb 2021
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Lived Experience Profile - Matthew Jackman, Global Mental Health Impact Story
by Matthew Jackman, Harvard Global Health Institute, April 2020
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Perspectives of lived experience across continents: our reality and call for universal health coverage
by The Lancet Psychiatry, January 2021
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The Lancet Commission on Global Mental Health: Commentary, 2020
by Matthew Jackman, Global Mental Health Peer Network – Regional Executive Committee, Western Pacific Region
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The Mental Health and Service User Experience During COVID19 in Australia: From Personal to Professional Disaster
by Matthew Jackman, A Journal of Disability Poetry and Literature (ISSN: 2690-7089), 2020
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To Live is to Lose, and to Lose is to Live - A Poem by Matthew Jackman
Generation Mental Health, 2020
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Transforming personal distress into global human rights advocacy in mental health: my story
by Matthew Jackman, Generation Mental Health
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The mental health and service user experience during COVID19: From personal to professional disaster
by Matthew Jackman, Generation Mental Health
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Sobbing without support: a tale of pandemic ‘living experience’
by Matthew Jackman, Generation Mental Health
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A social worker perspective. The mental health and service user experience during COVID19 in Australia: from personal to professional disaster.
by Matthew Jackman, The Nurse Break
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Guardianship patient characteristics and outcomes in geriatric social work practice: Australian context
by Matthew Jackman, Fiona McDermott, Jacinta Sadler, Nicole El Hage & Halim Lee
Mad Media
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Academic, Activist... Always the Pragmatist
Panel from the 2023 Conference on Critical Psychiatry. Activist work is usually uncompensated. As a result, activists frequently have to accept donations of “blood money” (e.g., from coercive hospital systems and large corporations). By comparison, academics are (usually?) hired for their thoughts, values, and ideas.
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2023 World Social Work Day Panel Discussion
To celebrate and discuss this year's theme - ‘Respecting diversity through joint social action’, a discussion panel was held on March 21 to connect fellow students and alumni. It was co-hosted by The University of Melbourne Department of Social Work, the Social Work Association of Graduate Students (SWAGS) & the Social Work Alumni Association (UMSWAA).
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Launch Event - WHO Framework for Meaningful Engagement
The WHO Framework for Meaningful Engagement of People Living with NCDs and Mental Health and Neurological Conditions is designed to provide practical guidance, norms, and standards to support WHO and Member States advancing, co-creating, and enhancing policies, programmes, and services through the meaningful engagement of individuals with lived experience of these health conditions.
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Mad Feminist Activism in the Global Feminist Movement at the 2020 Seneca Falls Dialogues
This dialogue brings together mad activists and scholars to discuss old and new directions in mad feminist activism and to consider mad activism's role in a larger feminist agenda.
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Professor Peter Beresford: From Psychiatry to Disability Studies & Mad Studies
Keynote at the CCDS Disability and Disciplines Conference, 2nd July 2015. This presentation takes its starting point findings from a new Joseph Rowntree Foundation user controlled national study reporting what mental health service users/survivors feel about prevailing models of mental health.
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Living with schizophrenia: a candid conversation about breaking the mental health stigma
Listen in to this raw and emotional episode when Keris Myrick talks candidly with us about her story of being diagnosed with schizophrenia, the isolation and embarrassment she felt early on, and the terrifying encounters she’s experienced throughout the years.
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A tale of mental illness | Elyn Saks
"Is it okay if I totally trash your office?" It's a question Elyn Saks once asked her doctor, and it wasn't a joke. A legal scholar, in 2007 Saks came forward with her own story of schizophrenia, controlled by drugs and therapy but ever-present. In this powerful talk, she asks us to see people with mental illness clearly, honestly and compassionately.
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The voices in my head | Eleanor Longden
To all appearances, Eleanor Longden was just like every other student, heading to college full of promise and without a care in the world. That was until the voices in her head started talking. Initially innocuous, these internal narrators became increasingly antagonistic and dictatorial, turning her life into a living nightmare.
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Self Labelling and Identity
We call mad people lots of names. Most of them are not meant to be complimentary. But what do mad people call themselves? Do they accept labels that others stick on them? Do they apply their own labels? Why might one person choose a different label than another? This is a short documentary in which 12 Toronto activists discuss how they identify themselves.
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The Inmates Are Running the Asylum
The Inmates Are Running the Asylum: Stories from MPA. A documentary about the group that transformed Canada's psychiatric landscape.
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Sanism: Dr. Jennifer Poole at TEDxRyersonU
Jennifer's talk challenges the dominant discourse of mental health, ranging from institutional settings to everyday life. In this particular society, we have all been taught to be sanists and sanism is a form of oppression that does not get that much discussion. She likes to think of behaviour and thought on a spectrum and that we are all different in some ways.
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@MadCovid’s Symposium / #MadMeetUp ‘The Second Wave’
@MadCovid held a special event on the 28.10.2020, featuring a survivor / lived experience panel to discuss the impact COVID19 has had on the mad community. As well as looking back, we also explored what mental health services and others can do to support us during the impending second 'wave' and any further lockdowns.
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Richard Ingram - Making Sense of Mad Studies, Part 1
Keynote address given by Richard Ingram at the Making Sense of Mad Studies Conference at Durham University, 30 Sept - 1 Oct, 2015
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Presenting the consumer/survivor/ex-patient movement
David Reville, an instructor with the School of Disability Studies, introduces the consumer/survivor/ex-patient movement, offering learners several ways to conceptualize the movement. The six-part metaphor is intended to frame the origins, activities, and politics of the movement.
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Thinking about white survivor research and mad studies - Alison Faulkner
Alison Faulkner is a survivor researcher and trainer in mental health with over 25 years’ experience of working in mental health research and consultancy. ISPS promotes psychological and social approaches to psychosis across the globe. Providing a place where professionals, service users and carers can share their ideas, hopes and struggles, and join together in constructive dialogue and debate.
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Dr Brenda LeFrancois - "Mad Studies: Maddening Social Work"
Dr. Brenda LeFrancois, Memorial University of Newfoundland. Connecting for Canada's 150th: Canadian Visionaries of Critical Social Work, St. Thomas University, 16-19 November 2017.
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MSc Mad Studies at Queen Margaret University, Edinburgh
The MSc in Mad Studies is a world first and game-changing programme. Professor Brendan McCormack, Head of the Nursing Division and Occupational and Arts Therapies at QMU and the Associate Director, Centre for Person-centred Practice Research tells us more about the course. The MSc Mad Studies is primarily a course for graduates with lived experience of mental health issues.
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Introducing Mad People's History
Watch this introduction for 'Mad People's History', an online course offered at Ryerson University. David Reville, an instructor with the School of Disability Studies, explains how the history of madness differs from the history of psychiatry, and highlights the importance of including the diverse perspectives of people diagnosed as mad, insane, or mentally ill.
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Tim Evans / Poem, Interrupted
Tim Evans performs 'Poem, Interrupted' at The 2017 Melbourne Spoken Word Prize, where he was awarded an honourable mention.
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Sanism and Anti-Oppressive Social Work Practice
This educational video is on understanding Sanism/mental health discrimination, and anti-Sanist and anti-oppressive social work practice. Dr. Hasan of Centennial College interviewed educators, social workers, mental health professionals and community activists of Toronto; and they shared their definitions and experiences in relation to Sanism and anti-oppressive social work practice.
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Exclusionary Sanism: a Critical Dialogue
Co-sponsored by the University of Pittsburgh School of Social Work and Toronto-based Service User Educators' Community of Practice, panelists engage in discussion and dialogue concerning "exclusionary sanism" and its impact and consequences, specifically including sanism vis-a-vis individuals (labelled) with psychosis and/or 'schizophrenia.'
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The Critical Role of Social Work & Mad Studies in Mental Health Recovery
Dr. Toby Brandon, PhD, Reader, Disability and Mental Health at Northumbria University, discusses how social work and mad studies can influence mental health recovery.
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Mad Hearts 2020: John Richardson - Encounters with the mental health system and documentary practice
A one day online event organised by the MSc Creative Arts and Mental Health: John Richardson - Encounters with the mental health system and documentary practice. John is a filmmaker whose work found direction after his own life-altering encounter with mental health services.
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Mad Practice Podcast
Welcome to Mad Practice, where we're shoring up our sanity skills for these crazy times. JD and Col, two unlikely, almost sane friends keep it less than real as they grapple with staying steady in a wobbly world.
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Vesper Moore: Mad Activism & Psychiatric Abolition
Vesper Moore, is a mad liberation activist, trainer, writer, and psychiatric survivor. They have been advocating as a part of the mad movement for several years and have been the recipient of many social justice and diversity awards. This interview was hosted by Angela Peacock, MSW of the Medicating Normal Team.
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Beyond Alternatives: Disability, Madness and Prison Abolition
Join Angela Y. Davis, Beth Richie, Liat Ben-Moshe, Maya Schenwar, and Victoria Law for a timely conversation about disability, madness, prison reform and abolition. Speakers will confront the entanglement of punishment and treatment, the carceral state and social work, and caging and “rehabilitation”.
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Liberating Webinars: Abolition, Deinstitutionalization, and Decarceration in the Pandemic
Autistic Women & Nonbinary Network hosted a discussion with Dustin P. Gibson and Shain M. Neumeier about connections between disability justice and abolition. This webinar will discuss connections between disability justice, abolition, deinstitutionalization, decarceration and explores strategies that advocates and organizers are using to challenge ableism, racism, and other forms of violence arising during the pandemic.
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What prejudices does society have when it comes to race, gender, age and class?
By OpenLearn from The Open University,. What prejudices does society have when it comes to race, gender age and class?
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Ableism and Sanism: The Conversation We Haven't Had | Joel Owens | TEDxYouth@LincolnStreet
Discrimination based on gender and race are, unfortunately, a fact of life, although thanks to modern movements, they are rapidly declining. However, these aren't the only forms of discrimination in our society. In his talk, Joel explains the need for society to recognize ableism and sanism more clearly, and explains how we can work to combat them.
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MAD studies
A video about MAD studies and how the diagnosis of schizophrenia were arguably used as a means of social control throughout history.
Mad Spaces
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VMIAC - Victorian Mental Illness Awareness Council
VMIAC is the peak Victorian organisation for people with a lived experience of mental health problems.
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Recovery Library - University of Melbourne
The Victorian Department of Health and Human Services subsequently contracted the Centre for Psychiatric Nursing of the University of Melbourne to develop an online repository of resources to support Victorian mental health services. The resulting product is the Recovery Library.
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Institute for the Development of Human Arts
Transformative mental health education and community development. IDHA are mental health workers, clinicians, psychiatrists, current and prior users of mental health services, advocates, artists, and survivors of trauma and adversity, who are interested in exploring the link between personal and societal transformation.
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Mad in America
Mad in America’s mission is to serve as a catalyst for rethinking psychiatric care. We believe that the current drug-based paradigm of care has failed our society, and that scientific research, as well as the lived experience of those who have been diagnosed with a psychiatric disorder, calls for profound change.
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MSc Mental Health Recovery and Social Inclusion (Online)
University of Hertfordshire
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Professor Helen Spandler - The University of Central Lancashire
Professor of Mental Health Studies at the School Of Social Work, Care and Community. Professor Hel Spandler has a particular interest and expertise in critical approaches to the theory, practice, policy, history and politics of mental health care. Their work is located within the emerging field of Mad Studies.
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Professor Peter Beresford at Brunel University London
Director Centre For Citizen Participation. His particular areas of focus are public, patient and service user involvement in policy and practice; democratisation and participatory approaches to research, particularly in relation to user controlled and user involvement research.
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Dr. Brenda LeFrancois - Memorial University of Newfoundland.
School of Social Work, Dr. LeFrançois’ main teaching experience has included courses at the BSW, MSW and PhD levels in social work theory and critical mental health. In addition, they have taught child abuse and neglect, social work with children and youth, community development and social activism, law and ethics, group work as well as qualitative research.
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Asylum Magazine (Volume 28, No3) Autumn 2021
Asylum, the radical mental health magazine, has been running for nearly 40 years, acting as a platform to voice and discuss all perspectives on mental health.
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MSc Mad Studies
At Queen Margaret University (QMU), this MSc in Mad Studies course will be particularly suitable if you are a graduate with lived experience of mental health issues engaged in the mad movement and/or mental health organisations within the third or public sectors.
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School of Disability Studies
At Ryerson University, The School of Disability Studies is the first in Canada to provide a degree education exclusively from a disability studies perspective.
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The Service User Research Enterprise (SURE)
King’s College London - The Service User Research Enterprise (SURE) is a unique academic research group comprised predominantly of researchers with direct experience of neurodiversity, trauma violence and abuse, mental distress, and/or (ref)using mental health services.
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The Yale Program for Recovery and Community Health
Yale School of Medicine - The Yale Program for Recovery and Community Health, does collaborative research, evaluation, education, training, policy development, and consultation. We work to transform behavioural health programs, agencies, and systems to be culturally responsive.
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Lived Experience Transformational Leadership Academy (LET(s)LEAD)
In partnership with the Yale Program for Recovery and Community Health
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Mental health Victoria
Mental Health Victoria specialises in public policy, workforce development and training, and services that build individual, organisational and community capacity.
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Australian NeuroFeedback Institute
Bringing together research and clinical practice to ensure that our interventions are evidence-based and at the forefront of the refugee trauma treatment field.
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ACACIA: The ACT Consumer and Carer Mental Health Research Unit
Aims to undertake research which is relevant to and benefits the lives of mental health consumers and carers in the ACT.
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Green String Network
Uniquely positioned in the gap between peace building, mental health and development, drawing on evidence of what works in each of these fields to deliver a powerful, integrated approach that has demonstrated impact.
Mad Studies
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Pink Sky Thinking - Lived Experience Consultation in Mental Health
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RMIT Mad Studies Network
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Off The Wall - Reading Groups
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Madness Network News
A Communication Network For The Interchange Of Energy And Support Of Psychiatric Survivors, Mad, Disabled, And Neuro-divergent People
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Transformative Justice
by Mia Mingus for the BATJC - TransformHarm.org
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Pods And Pod Mapping Worksheet - TransformHarm.org
By TransformHarm.org
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Mad Studies
by Critically Infused Social Work
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Anti-Bias Anti-Racism: Anti-Sanism/Anti-Mentalism
by American School of Madrid
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Anti-Oppression: Anti-Sanism
by Simmons University
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Mad Pride: Reducing Shame, Stigma, and Sanism
by By Carli Friedman, Director of Research, The Council on Quality & Leadership (CQL)
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Co-production: Putting principles into practice in mental health contexts
Cath Roper, Flick Grey and Emma Cadogan
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AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research
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Ladder of Citizen Participation
Sherry Arnstein
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Understanding Phenomenology: The Lived Experience
By Taniya Mapp
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Advancing User/Survivor Capacity & Leadership in Research
Transform Research
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International Mad Studies Journal
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Co-production or co-option: What do descriptions of peer work effectiveness studies tell us about understandings of peer principles and objectives in mental health services?
Alicia King, La Trobe University
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Madness & Epistemic Injustice
Aimee Sinclair & Sophie Ridley, Curtin University, Perth
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A Systematic Review of the Attributes and Outcomes of Peer Work and Guidelines for Reporting Studies of Peer Interventions
Alicia Jean King, B.Occ.Thy., and Magenta Bender Simmons, Ph.D.
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Restorative and Responsive Human Services
Gale Burford, John Braithwaite, Valerie Braithwaite, Australian National University
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The National Disability Insurance Scheme and people with severe and persistent mental illness/psychosocial disability
Debra Hamilton, Nicola Hancock, Justin Newton Scanlan, Michelle Banfield
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Heart and Soul Matters: A guide to providing spiritual care in mental health settings
Spiritual Health Victoria
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Infographic: What Is Tone Policing And Why Is It Wrong?
Shambhavi Raj Singh
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Effective Peer Employment Within Multidisciplinary Organizations: Model for Best Practice
Louise Byrne, RMIT University & Helena Roennfeldt, University of Melbourne
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Peer support in mental health services: where is the research taking us, and do we want to go there?
Steve Gillard, St George’s University of London
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Report shows significant growth in the community mental health workforce
Mental Health Coordinating Council (MHCC)
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Consumer Enablement Guide: How to Support Enablement
NSW Health
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Recovery colleges in mental health-care services: an Australian feasibility and acceptability study
Liza Hopkins, Andrew Foster, Sue Belmore, Shelley Anderson, Di Wiseman
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Peer Work Framework
The framework will illustrate the value Mind places on a lived experience of mental ill health as the foundation of our peer practitioner workforce - Mind Australia
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The Lived Experience of Pain: A Painful Journey for Medicine
Milton Cohen & John Quintner
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Recovering Citizenship III: Boundary Crossings: Systems, Communities, and Expertise
Larry Davidson & Michael Rowe, Directors of the Program for Recovery & Community Health Yale School Medicine
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Consumer, peer support and lived experience: Mental health and addiction workforce development strategy 2020–2025
In association with Matua Raki
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Cross-Sectional Comparison of Treatment Provided Under the Clinical, Integrated, and Partnership Staffing Models for Community-Based Residential Mental Health Rehabilitation
Nirvana Karan, Stephen Parker, Donna Jones & Terry Stedman
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Negotiating Hybrid Identities: A Scoping Review of Factors that impact Mental Health Professionals' Sharing of their Lived Experience in the Workplace
Alicia King, Lisa M Brophy & Tracy Fortune (La Trobe University) and Louise Byrne (RMIT University)
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Role Titles and Descriptions for the Development of the Mental Health Lived Experience Workforce
Queensland Mental Health Commission
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Factors Affecting Mental Health Professionals’ Sharing of Their Lived Experience in the Workplace: A Scoping Review
Alicia J. King, B.Occ.Thy., M.Int.Comm.Dev., Lisa M. Brophy, B.S.W., Ph.D., Tracy L. Fortune, Ph.D., Louise Byrne, Ph.D., M.A.
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Inside Co-Design - A Virtual Model Of Care For Healthy Hearts In People With Serious Mental Illness
This is a demonstration video of the Co-Design Living Labs Program at the University of Melbourne. Here, you will see a few of our 2000+ members convening to co-design further changes to the Healthy Hearts Virtual Model of Care. - by ALIVE Centre
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The Routledge International Handbook of Mad Studies
Peter Beresford, Jasna Russo
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Peer Worker Perspectives on Their Potential Role in the Success of Implementing Recovery-Oriented Practice in a Clinical Mental Health Setting
By Jaz Chisholm & Melissa Petrakis
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Clinician perspectives and sense of efficacy about the implementation of recovery-oriented practice in mental health
By Janice Chisholm & Melissa Petrakis
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Sanism, Mental Health, And Social Work/Education: A Review And Call To Action
Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity and Practice
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An Introduction To Anti-Black Sanism
Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity and Practice
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Sanism and the Law
by Michael L. Perlin, JD, AMA Journal of Ethics
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Professional education and Mad Studies: learning and teaching about service users’ understandings of mental and emotional distress
Newman, J., Boxall, K., Jury, R. and Dickinson, J., 2022 - Disability & Society, 34(9-10), pp.1523-1547
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Intention to action series: people power. Perspectives from individuals with lived experience of noncommunicable diseases, mental health conditions and neurological conditions
World Health Organization
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Writhing Writing: Moving Towards a Mad Poetics
By Phil Smith
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The psychiatrization of our children, or, an autoethnographic narrative of perpetuating First Nations genocide through ‘benevolent’ institutions
Brenda A. Le François from Memorial University, Canada
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Doing Mad Studies: A Participatory Action Research Project to explore the experiences and impacts of being part of a Mad People’s History and Identity course and the relationship between critical education, activism and emancipation
by Elaine Ballantyne
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The practice of participatory action research: Complicity, power and prestige in dialogue with the ‘racialised mad’
By Maria Haarmans, James Nazroo, Dharmi Kapadia, Charlotte Maxwell, Sonja Osahan, Jennifer Edant, Jason Grant-Rowles, Zahra Motala, James Rhodes
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An Autoethnography of Becoming A Qualitative Researcher: A Dialogic View of Academic Development
An Autoethnography of Becoming a Qualitative Researcher chronicles Trude Klevan's personal experiences of her doctoral journey, with Alec Grant as an external academic resource and friend, and her subsequent entry into the neoliberal higher education environment.
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De-psychiatrizing our own research work
By Jasna Russo
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Psychiatrization of Resistance: The Co-option of Consumer, Survivor, and Ex-patient Movements in the Global South
By Jenny Logan and Justin M. Karter at National Library of Medicine
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Supporting the sustainability of Mad Studies and preventing its co-option
By Peter Beresford & Jasna Russo on Taylor & Francis Online
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Mad Epistemologies and Maddening the Ethics of Knowledge Production
By Jijian Voronka & B A LeFrançois
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Mad Studies is Maddening Social Work
Jennifer Cranford and B A LeFrançois
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Mad Studies, Mad Theory
By B A LeFrançois
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Social Anarchist Social Work
B A LeFrançois
Mad Research
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Editorial: Destination Mad Studies
Brenda A. LeFrançois (Memorial University of Newfoundland), Peter Beresford (University of Essex), Jasna Russo (Brunel University)
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The Psychiatrization of Poverty: Rethinking the Mental Health – Poverty Nexus
China Mills (University of Sheffield)
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Survivor Research in Canada: ‘Talking’ recovery, resisting psychiatry, and reclaiming madness
Danielle Landry
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Survivor Researcher Network: Mental health knowledge built by service users and survivors
SRN Manifesto - Written by Emma Ormerod
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Why Mad Studies Needs Survivor Research and Survivor Research Needs Mad Studies
Angela Sweeney St. George’s, University of London
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Engaging with Transformative Paradigms in Mental Health
Louise Whitaker, Fiona L. Smith, Catherine Brasier, Melissa Petrakis and Lisa Brophy
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Australia’s Mental Health Think Tank
Independent group of world-leading mental health researchers, leaders in Aboriginal and Torres Strait Islander health, clinicians, people with lived and living experience, business leaders, carers and policy experts.
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Peer Support Work in Australia
A research project that aims to bring together peer support workers to explore our experiences in mainstream mental health and what this means for peer support practices.
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Human Services Research Institute
Meaningful outcomes for meaningful lives. Practical, person-driven solutions backed by data and participatory research.
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Voices Vic - Information Pack
Uniting (Community services organisation of the Uniting Church in Victoria and Tasmania)
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Evaluation of the Peer Support Test of Change: East Renfrewshire Health and Social Care Partnership
by Simon Bradstreet
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Framework for Mental Health Lived Experience (Peer) Work in South Eastern NSW
South Eastern NSW Regional Mental Health
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NSW Mental Health Consumer Peer Workforce Committee
18th February 2021
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CPWC Organisational Relationship Flowchart
NSW Mental Health Consumer Peer Workforce Committee
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Carer Perspective Supervision: A framework for supporting the mental health family/carer lived experience workforce
Centre for Mental Health Learning Victoria
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Lived experience workforce positions report
Lived Experience Workforce Team - Victorian mental health and alcohol and other drug services 2019–20 - (Centre for Mental Health Learning Victoria)
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'Sanism', a socially acceptable prejudice: addressing the prejudice associated with mental illness in the legal system
Williams, V 2014, University of Tasmania
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Sanism, ‘mental health’ and social work/education: A review and call to action
Jennifer Poole, Research Gate
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Learning and Unlearning: Two Social Workers’ Autoethnographic Exploration into Mad Studies
MacPhee, K. and Wilson Norrad, L., 2022 - Journal of Progressive Human Services, 33(1), pp.40-61
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Last Bastion Nevermore! A Qualitative Exploration of the Australian Government’s Fifth National Mental Health and Suicide Prevention Plan from the Perspective of Lessening Mental Stigma and Sanism in the Workplace
Mellifont, D., 2019. - Studies in social justice, 13(2), pp.283-303
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Sanism and Mad Pride: Critical Perspectives on Mental Health
McCarthy, K. and Doherty, B., 2019. - Dominican University of California
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Race, Gender, and Sanism: Remapping Mad Feminist Genealogies
Waggoner, J., 2022 - Signs: Journal of Women in Culture and Society, 47(4), pp.885-904.
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Mental distress and “self-stigma” in the context of support provision: exploring attributions of self-stigma as sanism
Armstrong, V. and Brandon, T., 2020 - Mental Health and Social Inclusion, 24(1), pp.41-48.
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Person-Centred And Consumer Directed Mental Health Care: Transforming Care Experiences
Produced for the National Mental Health Commission by the Mental Health and Suicide Prevention Research and Education Group, University of South Australia.
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Transform Research: Advancing User/Survivor Capacity & Leadership in Research
A virtual hub for the ‘building service user/survivor” research capacity project.
Mad Affirming Practices
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Characteristics of Peer Respites in the United States: Expanding the Continuum of Care for Psychiatric Crisis
Morgan Pelot and Laysha Ostrow
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IAP2 Spectrum of Public Participation
International Association for Public Participation
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Discharged: An Alternatives to Suicide Approach
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Engaging in the Consumer Workforce
Compiled by Hannah Friebel, Bipolar Life Committee Member
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An Introduction to Anti-Black Sanism
Sonia Meerai, Idil Abdillahi, Jennifer Poole - Ryerson University
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“How to Peer.” Introduction to Youth Peer Support in Mental Health Services
Orygen
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Suicide Narratives: Healing Through Knowing
Humane Clinic
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The co-optation of survivor knowledge: the danger of substituted values and voice
Darby Penney and Laura Prescott
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The Mental Health Peer Worker as Informant: Performing Authenticity and the Paradoxes of Passing
Jijian Voronka
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Canada Program Leads the Way in Addressing Mental Health Crises
Human Rights Watch
Mad Organisations
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Lakes District Health Board
Lakes DHB works with key stakeholders to plan the strategic direction for health and disability services.
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Jo Farmer Consulting
Policymaker and evaluator focused on improving health and wellbeing, particularly for those who experience mental illness and complex disadvantage.
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BEING Leadership Academy
Offers a range of short courses and workshops developed to enhance knowledge, build skills and to open educational pathways for people living with mental health issues in NSW.
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Care Seekers
Aged Care & Disability Support on your terms. We connect individuals directly to disability support workers and aged care workers.
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Alternatives to Suicide
Alternatives to Suicide is a peer-to-peer support practice for voicing, sitting with, understanding, and moving through suicidal thoughts.
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Discharged
We are an organisation that is driven by lived experience. We specialise in running peer support groups for people with personal experience of suicidal thoughts or feelings.
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Emotional CPR
The Connecting process of eCPR involves deepening listening skills, practicing presence, and creating a sense of safety for the person experiencing a crisis.
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Transformative Mutual Aid Practices (T-MAPs)
Transformative Mutual Aid Practices (T-MAPs) are a set of tools that provide space for building a personal “map” of wellness strategies, resilience practices, unique stories, and community resources.
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Schizy
Schizy Inc makes space in the arts for people with schizophrenia and diverse experience of mental health.
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Vermont Psychiatric Survivors
Vermont Psychiatric Survivors, Inc. is an independent, statewide mutual support and civil rights advocacy organization run by and for psychiatric survivors.
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Borderlands Cooperative - Centre for Regenerative Practice
The purpose of the co-operative is to be part of a world that values ecological, social and cultural justice and acts in accordance with these values.
Peer Workforce
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Consumer Perspective Supervision
A framework for supporting the consumer workforce.
By a partnership with the Victorian Mental Illness Awareness Council, Centre for Psychiatric Nursing and the Department of Health and Human Services.
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Intentional Peer Support Co-Reflection Guide
Intentional Peer Support - From the Book “IPS An Alternative Approach”
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VMIAC - Victorian Mental Illness Awareness Council
Mental health consumer peak body in Victoria, Australia.
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Australian Government National Mental Health Commission - Lived experience
Peer Workforce Guidelines - The Commission is strongly committed to improving engagement and participation of people with lived experience, their families and other support people.
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Mental health lived experience engagement framework
The framework guides policy makers to engage more meaningfully with people who have experienced mental illness and/or emotional issues, and those who care for them.
By Victorian Government Department Health
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Co-Production - Putting principles into practice in mental health contexts
This resource has been developed to inform and support understanding, planning, and implementing co-production initiatives specifically within the context of Victorian mental health services.
By Cath Roper, Flick Grey, Emma Cadogan
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Emotional CPR (eCPR)
Emotional CPR (eCPR) is an educational program designed to teach people to assist others through an emotional crisis.
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Humane Clinic
Australian Institute for Humane Responses to Hearing Voices, Psychosis and Suicide
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Intentional Peer Support (IPS) - Training Program
The IPS Core Training is for anyone interested in mutual support and has been widely used as a foundation training for people working in both traditional and alternative mental health settings. It is an outstanding 5-day training or 2-day management training.
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About Peer Work - Centre for Mental Health Learning (CMHL)
This resource has been developed to inform and support new consumer and family carer workers.
By Centre for Mental Health Learning (CMHL)
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Mind’s Lived Experience Strategy 2021-2024
Mind has developed this lived experience strategy to amplify lived expertise as a knowledge base, create a platform for change, to deepen and refine service provision and, to support us to lead best practice.
Mad Leadership
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Lived Experience, Research Leadership, and the Transformation of Mental Health Services: Building a Researcher Pipeline
Nev Jones, Ph.D., Kendall Atterbury, Ph.D., Louise Byrne, Ph.D., Michelle Carras, Ph.D., Marie Brown, Ph.D., Peter Phalen, Ph.D.
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The Global Ministerial Mental Health Summit
Recommendations to Ministers
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Effective Peer Employment Within Multidisciplinary Organizations: Model for Best Practice
Louise Byrne, Helena Roennfeldt, Jessica Wolf, Ally Linfoot, Dana Foglesong, Larry Davidson, Chyrell Bellamy
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Welcome to Lived Experience Leadership
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Queensland Framework for the Development of the Mental Health Lived Experience Workforce
Queensland Mental Health Commission
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Skin in the Game: The Professionalization of Lived Experience Roles in Mental Health
Helena Roennfeldt and Louise Byrne
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To Disclose or Not to Disclose? Peer Workers Impact on a Culture of Safe Disclosure for Mental Health Professionals With Lived Experience
Louise Byrne, Helena Roennfeldt, Larry Davidson, Rebecca Miller, and Chyrell Bellamy
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When Reality Breaks From Us: Lived Experience Wisdom in the Covid-19 Era
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Mad Activists: The Language We Use Reflects Our Desire for Change
By Lisa Archibald
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Alternatives to Suicide
Alternatives to Suicide is a peer-based response to supporting people who have made suicidal attempts or who have experienced suicidal thoughts.
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Finding North Network
As a safe and secure online environment, the Finding North Network is for the exclusive use of those who understand mental conditions firsthand. The Network is a forum for people to share their experiences, discuss ideas, and develop their voice in speaking to the issues surrounding mental health in Australia.
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Roses in the Ocean
Roses in the Ocean is a leading lived experience of suicide organisation, providing a critical national leadership, advocacy and policy, advisory, and workforce development role throughout Australia.
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Brook RED
Everyone who works at Brook RED identifies as having a living-experience of recovery and that we use the unique perspectives and knowledge gained from this experience as the foundation for all of our work.
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Lived Experience Leadership
At the forefront of research into Lived Experience Workforce development, providing clear and simple research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace.
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From Me to You
From Me to You is a training and consulting business with the exuberant and engaging Peta Dampney at its helm.
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Heidi Everett Creative
Mental Health + Neuro-Diversity Living Experience Arts
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Schizy Inc
Schizy Inc. is an established and trusted collective of creative advocates with diverse lived experience of mental health, changing the world.
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Athena Consumer Workforce Consulting
Athena Consumer Workforce Consulting is a consumer/survivor partnership committed to supporting the growth of consumer perspective leadership across the Victorian mental health sector and community.
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WA Peer Supporters’ Network
The WA Peer Supporters’ Network (WAPSN) is a forum led by Peer Supporters to advance Peer Support and the Peer Support Workforce in Western Australia.
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The Lived Experience Leaders Movement (LEx Movement)
A collective impact network connecting, supporting and strengthening the capacity of Lived Experience Leaders to create systems-level change and help all our communities thrive.
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Lived Experience Leadership – Mapping the Lived Experience Landscape in Mental Health (2021)
The National Survivor User Network (NSUN)
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Lived Experience (Peer) Workforce Development Guidelines
Australian Government, National Mental Health Commission
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Meaningful Engagement of People with Lived Experience
A framework and assessment for measuring and increasing lived experience leadership across the spectrum of engagement.
Mad Literature
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‘You don’t know what you don’t know’: The essential role of management exposure, understanding and commitment in peer workforce development
Louise Byrne, Helena Roennfeldt, Ying Wang, and Peri O’Shea
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A role for lived experience mental health leadership in the age of Covid-19
Louise Byrne & Til Wykes
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Lived experience leadership for organisational and systems change: A scoping review of concepts and evidence
Prepared by Mark Loughhead, Heather McIntyre, Ellie Hodges and Nicholas Procter - University Of South Australia | Lived Experience Leadership and Advocacy Network SA
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Lived Experience, Research Leadership, and the Transformation of Mental Health Services: Building a Researcher Pipeline
Nev Jones, Ph.D., Kendall Atterbury, Ph.D., Louise Byrne, Ph.D., Michelle Carras, Ph.D., Marie Brown, Ph.D., Peter Phalen, Ph.D.
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The Global Need for Lived Experience Leadership
Louise Byrne, Anthony Stratford and Larry Davidson
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‘Things you can’t learn from books’: Teaching recovery from a lived experience perspective
Louise Byrne, Brenda Happell, Tony Welch and Lorna Jane Moxham
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The stigma of identifying as having a lived experience runs before me: challenges for lived experience roles
Louise Byrne, Cath Roper, Brenda Happell & Kerry Reid-Searl
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Effective Peer Employment Within Multidisciplinary Organizations: Model for Best Practice
Louise Byrne, Helena Roennfeldt, Jessica Wolf, Ally Linfoot, Dana Foglesong, Larry Davidson, Chyrell Bellamy
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Strengthening Lived Experience Leadership for Transformative Systems Change: A South Australian Consensus Statement
SA Lived Experience Leadership and Advocacy Network
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Lived Experience Leadership: Rebooting the DNA of Leadership
Baljeet Sandhu, July 2019
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Leading with Lived Experience
Co-created by LLE in Birmingham and Bristol alongside UnLtd -The Foundation For Social Entrepreneurs, The Social Innovation Partnership (TSIP), Baljeet Sandhu and Sade Brown.
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The Model of Lived Experience Leadership
SA Lived Experience Leadership and Advocacy Network
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Perspectives: involving persons with lived experience of mental health conditions in service delivery, development and leadership
Charlene Sunkel, Claudia Sartor
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Role Titles and Descriptions for the Development of the Mental Health Lived Experience Workforce
Queensland Mental Health Commission
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Skin in the game: The professionalization of lived experience roles in mental health
Helena Roennfeldt and Louise Byrne
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Activating Lived Experience Leadership: Summary report on focus group research with lived experience leaders
Prepared by Mark Loughhead, Ellie Hodges, Heather McIntyre and Nicholas Procter, April 2021
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How mindfulness can help you trust yourself and the people around you
CoAct
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Adrian Munro: The Importance of Youth Mental Health
Adrian Munro, from Richmond Wellbeing
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Laysha Ostrow Blog
I am a writer and entrepreneur working to reclaim lived experience narratives.
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Sanism – The Little Known Prejudice
Autism Citizen
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Psychiatric Imperialism: Exporting Western Mental Disorders
by Neel Burton M.D., Psychology Today
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Lived experience leaders expect transformative change from Royal Commission
Victorian Mental Health Consumers
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Co-producing Lived Experience Leadership resources – a new partnership in mental health
My Mental Health
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Road map for activating lived experience leadership launches in SA
by Paulo Rizal for Third Sector
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A Case for Preserving the Diversity of Madness
Ethan Watters, Crazy Like Us: The Globalization of the American Psyche. New York, The Free Press, 2010.
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Practicing New Social Relations, Even in Conflict
By Dean Spade
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Embracing the Gifts of Conflict for Social Change
By Jovida Ross & Weyam Ghadbian
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9 Ways To Be Accountable When You’ve Been Abusive
by Kai Cheng Thom - TransformHarm.org
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People Power – introducing WHO’s new “Intention to action” Series to enhance the meaningful engagement of people with lived experience
World Health Organization